The Sickle Cell & Hemoglobinopathy Center of Western New York (SCHC of WNY) provides medical care, education, counseling and support for children and adolescents with sickle cell disease, thalassemia and other hemoglobin disorders. Inpatient care and radiologic services are provided at the Oishei Children's Hospital, while all outpatient care is based at the Katherine, Anne & Donna Gioia Pediatric Hematology Oncology Center at Roswell Park Comprehensive Cancer Center. Physicians providing care at the SCHC are faculty members of the Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo in the Division of Pediatric Hematology/Oncology.
A diverse staff of physicians, nurse practitioners, nurses, social worker, psychologist, dietician and physical therapists work together to give a full spectrum of comprehensive care, as well as access to an array of subspecialty care, such as pulmonology, gastroenterology, neurology and nephrology.
The SCHC of WNY promotes the highest standards of medical care and support to people and families affected by sickle cell disease and for the population at risk. Comprehensive subspecialty care by pediatric hematologists is given for both inpatients and outpatients, with emphasis on early detection, preventative care, and close monitoring and treatment for complications. Many patients are encouraged to seek amelioration of disease sequelae through hydroxyurea treatment chronic transfusion program or even recommendation for potentially curative stem cell transplantation. Close collaboration occurs with adult internal medicine providers for transition to adult sickle cell care for adolescents and young adults with availability of continued hematology consultation and transfusion management.
Comprehensive care is also provided for patients with various thalassemia syndromes as well. Thalassemia care includes management for those on a chronic transfusion program and those with iron overload, and close collaboration with sub-specialty services such as endocrinology, gastroenterology, nutrition, and others.
Medical education is provided to patients, families and healthcare providers involved in the care of patients with sickle cell disease and thalassemia. Also through the SCHC of WNY, diagnostic interpretation and consultation are provided based on results from NYS Newborn Screening for sickle cell disease, sickle cell trait, thalassemia, and other hemoglobinopathies. Part of this includes genetic counseling to convey an understanding of the genetics of sickle cell disease, thalassemia, and either traits to any affected patients, family, and prospective parent.
The center serves as a resource to stimulate biomedical and social scientific research that seeks to further our understanding of sickle cell disease, including new knowledge about the disease, management, preventative care and curative treatment.
Psychosocial services through the SCHC of WNY include comprehensive assessment and evaluation of each patient and family. Provisions include functioning, evaluation of needs, implementation and coordination of support social services to strengthen family functioning by utilizing available social services. Services and/or referrals are provided for individual, family, group, and vocational counseling and crisis services when needed.